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Canadian Association for Tay-Sachs and Allied Diseases

Canadian Assocation for Tay-Sachs and Allied Diseases or CATSAD (formerly NTSAD of Ontario) is a non-profit charitable organization, founded in 1988 by a group of people who shared a common tragedy. They were parents or supportive family members and friends of children who were afflicted with rare, fatal genetic diseases.

Tay-Sachs and the allied diseases are rare, fatal, genetic diseases that primarily affect young children. Some of the diseases attack the central nervous system, others affect vital organs. Despite variations in the course and symptoms among the diseases, the inevitable and tragic outcome is the same - death- usually in early childhood.

To date no cures or effective treatment exists for any of these diseases. Medical science has developed strategies that offer couples who may be at risk genetic information and informed choices including the possibility of prenatal diagnosis for Tay-Sachs and some other of the allied diseases.

Our organization was created to:

  • establish and maintain a Parent Peer Group to provide emotional support and practical guidance to parents of children afflicted with Tay-Sachs or an allied disease.
  • provide information, guidance, services, and resources to members of the public;
  • develop, coordinate and implement, educational, medical and research programs concerning the prevention of Tay-Sachs and the allied diseases.
Although the group is centred in southern Ontario, membership and enquires from all of Canada are very welcome.

For more information contact:

Canadian Association for Tay-Sachs and Allied Diseases
569 Laural Drive
Burlington, Ontario
L7L 5E1

(905) 634-4101

email: info@catsad.ca

CATSAD is affiliated with National Tay-Sachs and Allied Diseases, a non-profit organization in the United States.

updated December 11, 2004

About the Diseases
A list of the allied diseases and web links with information on them.

Resources and Links
Look here for information and links on Caring for kids, Genetics, General Health Resources, and more!

Parent Peer Group
About the CATSAD Ontario support group

News and Events
Information on recent happenings and upcoming events.