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  About CATSAD

The Canadian Association for Tay-Sachs & Allied Diseases (CATSAD) was founded in 1988 by a group of concerned parents, family members and friends of children with rare neurodegenerative genetic diseases including Tay-Sachs, Niemann-Pick, Canavan, Metachromatic Leukodystrophy and others.

CATSAD is a Canadian, registered non-profit charitable organization dedicated to the support of families of children with Tay-Sachs and allied diseases. We provide information and support services to individuals and families affected by these diseases and to the public at large. CATSAD works in affiliation with National Tay-Sachs & Allied Diseases Association in the United States.


Family and Peer Support Group
Education & Awareness

Family and Peer Support Group

Nowhere is the impact of CATSAD greater than in its Family and Peer Support Group which connects families affected by the diseases to a lifeline of information, resources and support.

Through the Family and Peer Support Group members can:

give and receive emotional support;
obtain help during a time of crisis;
share resources and ideas about such issues as medical and social service programs;
provide each other with practical suggestions about the day-to-day care of their children;
establish relationships with others who, on a personal level, understand what it is to deal with these diseases;
participate in support group meetings (held in the Greater Toronto Area);

Membership in the Parent-Peer-Group is open to parents of children affected with Tay-Sachs or one of the allied diseases. There is an annual cost of thirty five dollars for the membership. If you are interested in learning more, please contact CATSAD.


Services available for members, provided in cooperation with  NTSAD Association, include:

an international parent and grandparent network
an online message board
subscription to "Lifeline", the newletter published by NTSAD in the United States
care manuals
an annual conference
use of a CATSAD long distance calling card for use in calling other PPG members.
a copy of the NTSAD Parent Peer Group directory;

Education & Awareness

CATSAD also provides information, guidance and resources to the public and to health professionals in order to raise awareness and understanding of the diseases.

CATSAD is also involved in campaigns to increase awareness of carrier screening.  We know that sharing information is a powerful tool in the prevention of these diseases and in suppor to our members.  Please contact us to learn more.
 
 
 
For more information,
please contact us:
CATSAD
P.O. Box 80043
Appleby Postal Outlet
Burlington, ON L7L 6B1

email:info@catsad.ca
website:http://www.catsad.ca
CATSAD Brochure
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Canadian Association for Tay-Sachs and Allied Diseases, Inc. | P.O. Box 80043, Appleby Postal Outlet, Burlington, ON L7L 6B1  |  email:info@catsad.ca