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Canadian
Association for Tay-Sachs and Allied Diseases
Parent Peer Group
The Parent Peer
Group (PPG) is a focal point of the groups activities. Living with the
certainty of a child's gradual decline and death creates an emotional
burden too difficult to bear alone. There is little that can make the
situation easier; however, contact with other parents can reduce the
feelings of isolation that contribute to despair. Through the self-help
Parent Peer Group parents of affected children can:
- give and receive
emotional support;
- obtain help
during a time of crisis;
- share resources
and ideas about such issues as medical and social service programs;
- provide each
other with practical suggestions about the day-to-day care of their
children;
- establish
relationships with others who, on a personal level, understand both the
anguish and the recovery of being the parent of a dying child.
PPG membership also
includes:
- opportunity to
participate in monthly support group meetings (held in the Greater
Toronto Area);
- subscription to
"Lifeline", the newletter published by NTSAD in the United States
- a copy of the
NTSAD Parent Peer Group directory;
- use of a CATSAD
long distance calling card for use in calling other PPG members.
Membership in the
Parent-Peer-Group is open to parents of children affected with
Tay-Sachs or one of the allied diseases. There is an annual cost of
twenty five dollars for the membership.

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updated
December 11, 2004
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